Fighting for justice for her brother is all Janine Jones has known for the past 21 years.
Her sibling, Marc Payton, was infected with HIV and hepatitis C as a child in the 1970s after being treated with infected blood products.
He died aged 41 in 2003 and a final report into the infected blood scandal is due to be published on 20 May.
“I want my brother’s death recognised,” Mrs Jones, from Bromsgrove, Worcestershire, said.
“Every haemophiliac in this country that’s died has not been recognised yet. It’s just absolutely scandalous.”
Mr Payton was born in 1961 in Coleshill, Warwickshire and his parents, Ron and Val, noticed early on he would bruise easily and his legs would swell.
He was diagnosed at 10 months old with haemophilia and Mrs Jones said he “really suffered with his knees”.
“I’ve got memories of him screaming out in the middle of the night in pain and mom having to get up and drive him into the hospital,” she added.
When he was 11, he was sent to Treloar’s College in Hampshire, a boarding school for physically disabled children with a specialist NHS haemophilia centre on site.
It was here that Mr Payton and other pupils were given treatment using blood products which were contaminated with HIV and hepatitis.
Dozens of haemophiliacs who attended the school from 1974 to 1987 have died after having the infected treatment.
Survivors and families, including Mrs Jones, are seeking damages from the college.
A spokesperson for Treloar’s said it could not comment on the legal action “but we will continue to co-operate with the public inquiry into these issues and await its outcome”.
